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You are so right about the need for living wills and similar statements about how one wants medical treatment handled. My wife and I had to make decisions about how to proceed for her grandmother and it was agony. Having a living will for my mother in law made things easier for us when we was going through her final days in March. Everyone should think about a living will because you never know what can happen and you don't want those decisions to weigh heavy on your loved ones.
"You're born alone, and you die alone. What makes life worthwhile are the friends and family you find along the way, and having someone to hold your hand at the end."
Yul Brynner, (paraphrased)
My Mom had a living will so my Dad sat down with us and we discussed her wishes. All life support was removed and there was a do not resuscitate order. She was transfered to a hospice and lived for 40 days. My brother, sister, and I stayed with her in the evenings and my Dad stayed with her during the day.
It was tough watching my Dad clinging to hope of a miracle. When she passed we were all at her side. She waited for my Dad to make the 30 minute drive to the hospital then passed in his arms.
I tear up now still talking to you about her passing. All I can say is don't shut down your feelings. Feel it all. Be there.
Death is the end of a person's life here (No, I don't want to get into a conversation about what happens next), but it is not their whole life. Just remember to celebrate and commemorate her whole life.
To hell with Dylan Thomas, go gentle into that good night.
However you struggle through the decisions that only you can make, be present, don't fight the things you cannot change, and remember to let yourself cry.
Really sorry to hear about the news. I lost my mom almost 2 years ago. It was tough loosing my last parent.
Take care of yourself and your family. I know it will be tough to hear but your mom probably would want you focus on life (wife, children, siblings, etc.) rather than focus on death. If or when she does pass, clebrate her life and what she gave you and you sibs.
An new friend and respectful admirer, russ...
I've always read your blog even though I dont subscribe to all your viewpoints. I gotta say that it takes a lot of courage to blog about something as personal as this.
I'm really sorry to hear about these tough times for you. However, KEEP THE FAITH and I'll surely keep you and your family in my prayers.
Mario
Best,
Jeremy Botter
I'm so sorry to hear this, I was really hoping it wouldn't be that bad.
There's nothing I can say that will help with the pain you're going through right now, all I can say is that my prayers are with you and your family.
I can't imagine how you must feel. Only that it really sucks.
My thoughts are with you, and your family.
Cheers
Des
She was the only one in the family who was able to stay with her to the end after they turned off life support. She's glad she did.
On a tech note, my daughter (7) is very interested in all the equipment around when we visit him. She is always asking "what does that do?" Then I realized, these are all specialized computers (even the bed has an lcd) doing their particular tasks. The room TV's even have Internet access and email. Yikes!
I don't know you from a bar of soap, but that "One hand squeeze at a time" line put a huge lump in my throat. Good luck.
My prayers are with you and your family. As many folks ahve pointed out above, it takes great courage to talk about this here.
All my hopes!
xo
Sometimes the simplest acts convey the deepest emotions. The message will get through. Take care. We're with you.
I am so sorry. You all will certainly be in our prayers. Please don't hesitate if I can do anything or even if you need someone to talk to.
_ryan
Keep your head up... My thoughts will be with you and your family.
-Jake
I do not know your mother, she must be a fine woman, you can tell by the way she raised such a fine son. As the minutes past into the unknown future, may each moment be as precious as you and your family can make it.
So sorry to hear of the latest news about your mom. It is hard to lose someone no matter how. My Dad died of a massive heart attack 10 years ago so I know what you are going thru. My heart and prayers go out to you and your family during this difficult time.
Words fail prayers never do. You are in our thoughts and prayers as is your family.
A reader.
Tonight I asked my mother to read her favorite excerpt from a book I bought her last Mother's Day. We hope it makes your Mom smile, at least inside.
"Everybody knows that a good Mother gives her children a feeling of trust and stability. She is their Earth. She is the one they can count on for the things that matter most of all. She is their food and their bed and the extra blanket when it grows cold in the night; she is their warmth and their health and their shelter; she is the one they want to be near when they cry. She is the only person in the whole world in a whole lifetime who can be these things to her children. There is no substitute for her. Somehow even her clothes feel different to her children's hand than anybody else's clothes. Only to touch her skirt or her sleeve makes a troubled child feel better."
-Katherine Butler Hathaway, American Writer
I've simply no words of wisdom to offer, though I often enjoy reading yours. Your family is in our prayers.
-Rick
you have my sympathy. Just remember that there is hope at the end of every life. I will keep you in my thoughts and prayers.
A friend of my mother's died from a stroke, and I loaned my friend a bunch of celtic music CDs (her Mom was Irish & so liked Celtic, which I have lots of). It was a great comfort to my friend, and she believes that the music made a difference -- for the positive-- in the last days of her Mom's life. If it seems right to you, consider playing music for your Mom as a way to be with her and communicate in a way where words are no longer useful.
Love and peace,
Susan
My thoughts and prayers are with your mom, your family, and you. I'm very sorry to hear your news. I hope your memories and the love of your family and friends provides some comfort to you.
Spend whatever time you can with her and make that contact with her. Say the things you need to say to her - she will understand them.
May God's grace and light shine upon you and your family as you go through this difficult time.
Rich
this is exactly what happened with my Dad. Its extremely tough and hard to go through. My dad never woke up from the stroke. One minute he was there, the next minute gone forever.
My thoughts are with you and with your Mom.
Jacob
You and Yours are in my prayers.
Scott
"Everybody knows that a good Mother gives her children a feeling of trust and stability. She is their Earth. She is the one they can count on for the things that matter most of all. She is their food and their bed and the extra blanket when it grows cold in the night; she is their warmth and their health and their shelter; she is the one they want to be near when they cry. She is the only person in the whole world in a whole lifetime who can be these things to her children. There is no substitute for her. Somehow even her clothes feel different to her children's hand than anybody else's clothes. Only to touch her skirt or her sleeve makes a troubled child feel better."
Katherine Butler Hathaway, 1890-1942 American Writer
Warmest Regards in this very difficult time,
Anthony
My thoughts and prayers are with you in this gravest of times. Remember the footprints in the sand. It is when times are the toughest that the Lord will carry you on his shoulders.
For all the bickering that happens on this blog, you must see that when it comes to things that matter, everyone is behind you. Seeing the number of people that left their messages on this blog shows you the number of lives you have touched. Your mother will be very proud of you.
I will pray for the good Lord to give you the strength to bear this burden.
Hash
Remember the good times, they will be with your forever.
Sean
What you will have to remember is all the fun times that you and she had.. even the times she was giving you heck in only the ways that she could, and so forth..
My thoughts will be with you.. Take care, my extended friend.
God bless you and your family.
My thoughts are with you during these difficult times. I imagine how very proud of you she must be. Take care.
I'm glad you blogged about this experience. It helps us realize the things that are really important besides all the techie stuff.
My thoughts are with you and your family.
Bill K.
Much though I wish I could share words that would comfort you, I know there is little, if anything, I can add. Just know that, as comforting as it is to your mother, it is more so a privilege to you to be present during her final hours, when she needs you. May God bless her, and you, and your whole family, and may he bring each of you comfort.
Doug
Two years and one day ago my wife and lost a child. A good friend of mine stood by my side and told me, "The journey of every soul is meant to be a celebration. No matter how long, or how short the journey, celebrate it in love." That took me through some very dark times.
My thoughts and prayers are with you and your family.
With loving intent.
James
I told my mother that I loved her and so did God.
She died the next day, calmly. The cancer which hounded her for 20 years finally took her from us. My brothers were also with her in her final hours. We have lost a mother and the very source of our lives.
Best to you and your family.
James
Do try to take some time to remember the good memories of the past, realize the blessings of the present, and see the promise of the future. Take good care.
My thoughts are with you, your family, and your mom.
We'll all pull through this together. Keep writing your informative, powerful, and emotional blog.
You're doing all the right things.
I'm truly sorry. God Bless.
Kaushik
May a miracle happen to you.
All the best regards.
At least your mom knows her family is present for her final days. That's a comfort I don't think I'll have.
Anyway, it sounds like her life made a difference, and that's all any of us can really hope for.
You have the support of all of us in these tough times. I'm glad you chose to share this personal struggle with the community who reads your site. I'm just sorry that things turned out so catastrophic. Our thoughts and prayers are with you.
Here is something for you and your family, it was said at my mothers funeral (sorry it is a little long, but it may help you at this time, like it helped me.)
Go gently dear Mum. Go gently to a rest beyond words. And may something of your new joy translate itself in time in our regard. We wait in eager longing and with one ray of hope. And that ray shines out - hope. It brightens our darkness and guarantees our belonging with you always. That ray speaks to us in your name now and tells us how cherished we are by you forever. In your name it whispers:
'Cherish everything of my care for you. Cherish my parenting of you, with all its fondest moments; its intimacy; its closeness. cherish these and hand them on so that I might parent my children's children. Love is eternal and I'm here to welcome you to your eternal home. And so I say to you, my forever children, we will meet again on God's mountain top in an embrace that will last forever. For together we belong and together we belong and together we will be in the home of heaven. For this day brings for me, and for you, a new kind of belonging.'
Think of it as a time to catch up with the family that you still have and look forward to spending time with them in the future. I hope the news about your mom gets better.
Hang in there.
I love you dude
....this really suck I only wish I had seen her more
....
Say hi to Alex and Ben for me.
peace
Hold your Mom's hand and tell her you love her. Then repeat.
And take care of yourself, too.
-- David
I'm really sorry. Experiences like these make us sit up and re-evaluate our perspectives and priorities in life.
Wish you and your family all the strength and courage to go through this.
my father had a pretty bad stroke 6 years ago. For 3 weeks he did not move, did not open his eyes, did not recognize anybody. The doctors informed us that he would stay in a vegetative state, and possibly die within a few weeks.
Turns out they were wrong. My father recovered. He is still alive. He can't move his right arm and foot, but he can walk with a cane, he talks, and most importantly he understands us. Though he's not the same he used to be, he enjoys his grandchildren, including two that were not even born when he got ill. They made him laugh more than once.
The point is, don't despair, and don't give up yet. Your mother could recover, and she'd need all the love you can give her. Or maybe not. God only knows.
My prayers are with you and your family.
Know you've gone through a lot over the years: your strength will pull you through this, and give you the foundation to find peace here and celebrate her live and your relationship, in all directions it has gone. Take care and our thoughts are with you during this time.
Matt
You will be in my prayers. I hope for the best for you, your mother, and your family as you make such a shocking and difficult transition. As others have said, you will always have her, but loss is about relocating that person. I am so sorry.
Michael.
B & J.
Thoughts n Prayers..
g@u
-Darren
I also admire you for blogging about this - having blogged about very personal stuff in my time, I feel it helps - it's a type of therapy.
V & L
My father was really having a hope that my mother would revive soon. When we enquired about the quality of life which she would get ... if at all she survives ... doctors didn't give us any hope at all.
After discussing with my dad, my wife and my uncle I made a toughest decision in my life .... I informed the doctor to take her off the ventillator support :(
I really donno how to explain the pain i underwent and the tears which came from my moms eyes added more pain to me.
I am getting emotional on when I write about that day's incident. huh I know the pain you would be undergoing as I have myself undergone it. Don't try to hide your emotions ... cry it out :(
You're a cool guy on channel9, and this is really sad news :(. Hope you stick in there, you're really strong already, i hope things turn out alright.
- Winston
Christian
Just to let you known, our thoughts are with you this side of the pond too.
I'm truly sorry.
So sorry to hear of your mother's illness. Not being religious I can't offer you a prayer, but you and your family will be in my thoughts over the next few days by way of silent support, and to keep me reminded of what's really important in life.
Nothing prepares you for it and it is the most awful time for everyone.
You never, ever, get over something like this entirely. But time is also a healer.
I just want to say that I am very sorry and sad to hear about your mothers stroke. I'm a Christian and that may not mean much to you right now but I want you to know that I will be praying for you and your family and that at this time that Jesus would send you peace.
Here to talk if ever you should need a cry for help.
David, from the UK
So very sorry to hear about your Mother. I can't imagine how you feel and so I presume to offer any advice, but thank-you for putting such difficult news here for us all to read.
God be with you.
-Christian
Paschal
there's really nothing I can say which hasn't been said already by other commenters and far more eloquently than I ever could.
My mother went through similar events several times (pulmonary embolism in 95, catastrophic brain haemorrhage in 97, stroke and heart attack in 2005).
I've sat beside that hospital bed holding that hand too. It is a horrible mix of helplessness and despair. You want your mother's suffering to stop but you don't want her to die. You want her back the way she was but you know you can't turn back the clock.
Mortality is a bastard.
Thinking of you.
Tom.
Stay present Robert. You're in my heart.
I'm sorry about your mother.
I'm very sorry to hear this news.
I lost my dad over 30 years ago, and it still hurts. Please know that there are many others who will be remembering you and your family as you go through this very difficult time.
Doug
be well. God bless.
though is hard, but it was a short path, she's going to a better place now
It is at times like this that we grow as persons through our grief. A while back you talked about surrounding you with happy people. Right now it may be hard for you to think that is possible. But try to think about all the happy times you have spent with your mother and your family. Remember those good times, talk to your mother about them and tell her how much you appreciated those times. In other words, surround yourself with happy memories.
Remember that someone passing away is always hurtful for those who remain, but that the good thing is that the person is no longer suffering. We always wish they could stay with us for a longer time, but instead of focusing on how much we miss them, focus on the good things they gave us.
It certainly is good to see the big number of your readers who are sending you good thoughts in these difficult times. It tells you that these readers not only like your writing, but they also feel your suffering.
Stay brave, cry plenty and try to focus on happy thoughts!!!
Our thoughts are with you and your family.
Our deepest condolences.
Namaste, John Vajra
Regards,
JR
I know how hard it is, as you said, to not override your mom's wishes as well as strugle with the question of just how right are the doctor's assesments. Take time for reflection, prayer, or meditation and in your gut you will find a peace that will soothe the pain.
I have lost several near and dear friends and relatives in my life, and I have found that finding that peace is a critical part of mourning the loss.
I have been through this sort of situation, fortunatly for me it was in my youth with a cousin a year or so older than myself with a critical head wound. I have to agree that having it known what your wishes are critical for your loved ones. I just cannot stress enough how important this is.
Scoble dude, my heart is out to you and your family.
Peace.
Our thoughts and prayers are with you and your family.
Marcus
- adam
It's good that your mom is at least conscious of your presence and your love for her. Saying goodbye is incredibly difficult, but hopefully the fact that you are with her makes the process easier for your mother.
You're in my prayers.
-Teresa
Went through a similar situation with my grandfather a few years back. He went into the hospital with a minor heart attack, which was subsequently complicated by pneumonia. He stabilized for a few weeks, and things even started to look better. I went in and saw him while he slept one evening, told him I loved him, told him I wish we were closer but I remember everything he did for me when I was a kid, told him that he's a gift to me and I'm sorry if I took his 95 years of life on this planet for granted.
I went to Telluride two days after the doctors proclaimed he was getting "much better." On my second day there, I got a call from my wife with the news that he had passed away the previous night. The last time I saw my grandfather alive was when I whispered to him in a dark, quiet room, tears running down my cheek.
I cried all day on and off on the slopes. I made the decision right there to not only mourn his loss, but also celebrate his life. A man of 95 is a veritable time traveler, and such a life should be celebrated.
Celebrate your mom's life, but don't forget to feel. Be there, live in the present, feel what's happening. It might hurt, and it's not easy, but in the end you will feel better about it and closer to your mom, both now and in the future.
Best wishes and stay strong. For your mom, be happy. It's what she wants.
-- Jeff Ventura
I'm really sorry to hear about your mom. Iknow how tough it is to cope with the loss of a loved one. Just hang in there.
Can't imagine what you're going through. My prayers for your and your family.
Peace and love to you and yours.
Be with your mum and cherish the time you have left.
When you look back on this time you will be glad that you were able to be with her.
Thoughts and prayers stillwith you and all of your family.
Your mom was one smart cookie, thinking through her beliefs, sharing with everyone her wishes, and signing the paperwork (DNR order) to lessen the burden on her family.
The group "Aging with Dignity" developed "5 Wishes(tm)", which I bought for everyone in my family. Here's a brief description from their web site:
The Five Wishes document helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional and spiritual.
It provides thought-provoking guidance, along with a form to fill out that's widely (but not universally) accepted across the US.
As you've experienced, the time and thought that goes into these preparations is a welcome simplification later, in an incredibly complex, stressful and confusing time.
My thoughts are with you.
John
Please take care of yourself.
Our thoughts are with you and your family in this very sad time.
Take care.
We wish you well as you go through this.
Sincerely,
(Long time reader)
Solo
Thinking of you and your family here in London, UK.
Look after yourself
While I can't offer what it's like to lose a parent first hand, I know second hand from those close to me. Relish in her, the person who helped you become the man you are today, keep her close in your heart and she will be with you til the end.
I'll keep you in my prayers and offer my wishes of comfort to you.
Such sad news.
Darren.
Rob P
I know it's a hard time..
but i do believe everything happens for the good.
sometiems we just don't know how or why.
but you know ... God loves her more than any human
ever can.
talk really is cheap.
but I do hope these words give you strength.
it'll all turn out good.
n this too will pass.
Just remember God loves her more than you do & everything that happens - happens for the best of us.
God bless her n ur family!
Shariq.
When in doubt God is in charge. Your mother was an inspiration to all she touched and she touched me deeply. She was my Mom's best friend and a second mother to me growing up. The last time I saw her was at my brother's wedding and full of life as always. We talked, laughed and hugged... What a wonderful time! She will always be with me. Here is a poem for you and your family in this trying time...
God Heals
Remember when you heard the words -
and your mind went blank - you were in another world
God heals
Remember in your darkest hours -
when all that surrounds you is pain and sorrow
God heals
Remember friends' prayers - your family's encouragement
- glimmers of hope from everyday angels
God heals
Quiet...you can hear Him now -
always there - yet never this close
God heals
It's just another day -
yet everything has changed - and you hear yourself say
God heals
Birds are singing -
the sky is a beautiful blue - flowers are blooming...
God heals
Truths that you knew as a child -
awakened again with new understanding
God heals
Remember when others can't -
that life is a gift - each day to treasure
God Has Healed...
I don't know what to say to you in a situation like this other than to quietly pray for your mother and your family. It is a difficult time -- a time that hundreds of people are enduring with you as is evident by the comments. Please be strong and send our love and concern to your mother.
May God's grace and peace be with your mother, you, and your family.
I can feel your pain experience a loved one slip away and sitting helpless seeing your mother fade away. It boldly reminds us of the impermanence of our lives and if your believes are strong carries the hope of a better existence thereafter.
Peace to your and your mother's soul!
-- Stephan
Sorry to hear.
My prayers are with your mother, you and your family.
God Bless
Jean
My name is Dave Golden, and I've been reading your stuff for a while and introduced myself a few months back when I ran into you in the Seattle airport while you were traveling to San Jose, and mentioned I enjoyed reading your blog.
My prayers go to you and your family. News like this is hard to hear.
God bless, and remember good things come to good people, and you are in fact a good perosn.
If you are a spiritual man, then I also believe it’s somehow good for the spirit to see the family there when she first departs from the body.
I am sorry.
My own mother has alzheimer's disease and has been slipping away over the last couple of months.
She is now having a very hard time speaking as she says " the words will not come to me, sorry".
We also get just a knowing look and a hand squeeze, small assurance that she is still with us.
Just remember that they will always live in your heart and soul and never ever truly leave you.
All the best, to you and your family.
Lawrence
Reading this makes me appreciate the time I have with my mom,
and will have to bring this up with her on Mother's Day.
Take care.
I've only had the privilege of meeting you once -- at Gnomedex, last June '05 -- and all that I can think to say through my tears, tonight, as I read your blog, is that you have touched my life in a positive way, by your example.
Steve Raymond
Regards
Rohan
I am so, so sorry. I went through it with both parents - and it does suck beyond belief.
My thoughts are with you.
Take care of yourself,
Heather
And that it is ok for her to go.
BL